We have had quite a bumpy road the last six months or so. Mateo has repeatedly been hospitalized for dehydration caused by diarrhea. He had an upper Gi done, which showed a large portion of bowel being quite distended. Dr Wadie ordered a barium enema to see exactly where the problem lies. This test came back showing that it is indeed his small intestine that is swollen. Since this has been an ongoing problem, it has been decided that surgery is our only option.
We are currently in Peds at SHMC at Riverbend and have been since Monday. He is on IV fluids and antibiotics for dehydration caused by diarrhea caused by bacterial overgrowth due to the distended bowel.
His upcoming surgery is scheduled for Thursday Oct 7th. It will be exploratory, to find out if the distended bowel is on top of his stoma or below. If it is below, this would be great! Dr Wadie will just remove this portion of intestine, and we will be good to go. If it is above, Dr Wadie will do what is called the STEP procedure (google it- great info) to narrow and lengthen his bowel, which will cause more absorption of nutrients, more formed stool, and less bacterial overgrowth. ALL GOOD STUFF FOR MATEO! He will also remove the intestine that Mateo is not using, which is approx 24 cm and his entire colon.
As we take our next journey, we do ask our family and friends to send some prayers for us! This will be a difficult time for us, especially for Mateo!
I will post more and keep everyone updated as I learn more.
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